Family of Henrietta Lacks Reach Settlement, Gains Control Over HeLa Cell Research

August 8, 2013 ‐ By

Source(s): Amazon, Wikipedia

Source(s): Amazon, Wikipedia

In 1951, a 31-year-old woman by the name of Henrietta Lacks took her last breath. Unfortunately, she succumbed to the cervical cancer that took residency in her body, but the legacy that she left behind shaped DNA and cancer research as we know it. She was treated for her illness at Johns Hopkins. During one of her radiation sessions, two samples were taken from her cervix without her permission. One sample was swapped from a healthy area of her cervix, while the other was taken from a cancerous area.The cells eventually became known as HeLa immortal cell line and are generally used in biomedical research. The interesting tale is best recounted in 2010 best-seller, The Immortal Life of Henrietta Lacks.

It is said that the samples taken from Henrietta set the groundwork for the multi-million dollar biomedical research industry, as they allowed researchers to analyze the cells in a way that they couldn’t on living humans. To date, Henrietta’s relatives have yet to see a dime of the millions of dollars made off of her cells, but as of yesterday, they’ve gained a little more control over scientists who are given access to the cells and what they’re allowed to do with them.

The legal battle was a rather legnthy one, but the family reached a settlement with the National Institutes of Health. According to Washington Post, under the new agreement, two family members will retain seats on the six-member committee that regulates scietists and doctors who want to conduct research on the cells. In addition to being including in the decision making,they will receive their due credit in any scientific journals that come as a result of the research being conducted on the cells. According to the Huffington Post, this decision was reached after the family raised concerns about researchers who wanted to go public with Henrietta’s DNA makeup.

“The main issue was the privacy concern and what information in the future might be revealed,” said Henrietta’s grandson David Jr.

“In the past, the Lacks family has been left in the dark. We are excited to be part of the important HeLa science to come,” added Henrietta’s granddaughter Jeri Lacks Whye.

Good for them!

 

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  • joebabbs

    These cells are in such wide use that I don’t think anyone has control over their access; nor is there enough time in the day for her entire family to review all work that is done with them.

  • Estella Cohen

    I read the book about her. Congrats to the family!!! It’s never to late to fight for justice for your family.

  • BeechCreek

    It’s wonderful that so much good has come from the research using her cells, but the family certainly should share in the profits from the medications. it isn’t right at all that the labs are making so much money and not paying anything to the family.

  • Glenn Stein

    Let’s say I take a sample of your DNA. I use that to create a clone of you. Are you entitled to the earnings of the clone? If Henrietta had given permission for the tissue to be taken, she wouldn’t be due any compensation for the medical discoveries. The family is perhaps due some monetary compensation for the theft of her genetic material, but nothing beyond that.

  • Karin

    This article is in need of serious editing!

  • For real

    Ok, now give them their share of the financial proceeds.

  • “It is said that the samples taken from Henrietta set the groundwork for the multi-million dollar biomedical research industry, as they allowed researchers to analyze the cells in a way that they couldn’t on living humans. To date, Henrietta’s relatives have yet to see a dime of the millions of dollars made off of her cells, but as of yesterday, they’ve gained a little more control over scientists who are given access to the cells and what they’re allowed to do with them.”

    This is criminality at its finest–and insulting pacification to the Black family. Only Caucasians can create perpetual wealth through CRIMINALITY and use THEIR legal system to protect themselves from retribution from those they’ve committed offenses against. An “Erin Brockovich”-type is direly needed litigate this case.

    • mect

      mect
      NUFF SAID!

  • sharongibson

    One sample was swapped from a healthy area of her cervix, while the other was taken
    from a cancerous area.<<

    The word is swabbed, not swapped. And scientist is misspelled; there should be a comma after granddaughter in the last line of the article.

    Good grief. Is MadameNoire in need of an editor?

  • black_dontcrack

    These people were robbed 100% and this is all they get when people have become millionaires/billionaires off of this woman? I’m sorry, but this just isn’t good enough.

  • reading is fundamental

    this has no bearing on future or past royalties on a scientific resource that has generated millions of dollars.

    • folamix

      That’s what I was thinking.

    • mect

      Show me the money? Where did it go? where is it going? Folks have and will make a whole lot of money whats in it for the family?

  • Anon

    “swapped”!!?? Seriously???

  • Nene

    R.I.P she was beautiful. Her family deserve this win. If it wasn’t for her most women today would be dead from cervical cancer because we would not even know what it was.

  • newgirl

    Good for them. I read that book awhile back and this could happen to anyone who has labwork done and does not specify if they want the tissue sample destroyed afterwards.

  • Sarah

    Reading the book about her now. This is day to REJOICE!!! Congrats family!!!

  • Anonymous

    Finally!

  • Finally! I am so glad that they didn’t give up the fight. It’s only fitting that they should determine how the cells should be used. However, I still think that they should still fight for monetary compensation. Of course, it won’t undo the past, which is shameful. But in all fairness, her family should receive the fruits of her contribution.

    • Karen

      I totally agree with you A.J.. Others are making a profit from her cells. It’s like the Indians land being taken away from them and someone else profiting from the same land. Not fair at all in the monetary aspect.

    • Nancy Davies

      I’m glad that the family didn’t just care about monetary gains. I really respect them for that. Their contributions through their cells has really helped others. My hats off to this family.

  • Kam

    So happy for them, they may not be able to gain any monetary rewards for their mother/grandmother’s massive contribution to the world but at least now they get a say in how the HeLa cells are used.

  • Jemyla

    I work in a research lab, and a lot of people use the cell line. Companies make so much money it. I’m glad the family is starting to make money off of it.

  • OhOkay

    I remember reading about this in the NY Times maybe 3 years ago. I’m glad they were able to gain some control over this, it’s the least you could give the family.

  • Happy

    Great news! This has been a long time coming!