All Articles Tagged "myelodysplastic syndrome"

“I Truly Felt I Was Slipping Away”: Robin Roberts Covers PEOPLE, Talks Recovery After Bone Marrow Transplant

February 13th, 2013 - By Victoria Uwumarogie
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Robin Roberts

If you’ve been missing Robin Roberts’ beautiful face on Good Morning America, you’re not alone. You’ve probably read about the bone marrow transplant Roberts had to have five months ago for myelodysplastic syndrome, a major battle for Roberts, a cancer survivor. She sat down with People magazine to talk about the hard recovery process and her health now. She covers the magazine looking absolutely gorgeous, smiling with her close-shaven hair cut and looking more and more like the lovable lady we’re used to seeing every morning next to George Stephanopoulos.

But it wasn’t an easy road to get back to the old Robin. She went through so many ups and downs physically and personally over the last few months. On top of having to worry about having the operation, Roberts had to deal with the death of her mother, who passed when Roberts took her medical leave. As her sister gave her the bone marrow necessary for her operation in September, things became more difficult after the fact, and the 52-year-old GMA anchor said for a time she felt like she was dying after slipping in and out of consciousness repeatedly. “I couldn’t eat or drink. I couldn’t even get out of bed. I was in a coma-like state. I truly felt I was slipping away … then I kept hearing my name.”

But luckily, with time and rest, Roberts tells the magazine that she is feeling much better. Hence her decision to come back to GMA to see if she has the energy and ability to do her thing again on February 20. “It’s an amazing feeling, each day feeling stronger.” In reality, she’s not even the old Robin, she’s new and improved, and we can’t wait to see her back next week!

Pick up the newest issue of People to check out her full interview.

 

Good News: Robin Roberts Has Returned Home

October 11th, 2012 - By madamenoire
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From Eur Web

Robin Roberts has informed her will-wishers that she is now home from the hospital after receiving a bone-marrow transplant last month.

“There’s no place like home. After 30 days in the hospital I’m home,” the “Good Morning America” anchor wrote this morning on Twitter, according to People. “Praise God from whom all blessings flow. Thank YOU and bless YOU. XO.”

Read more at EurWeb.com.

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Sending Well Wishes: Robin Roberts To Take Medical Leave From “GMA”

July 27th, 2012 - By Brande Victorian
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Source: Us Weekly

At the end of next month Robin Roberts will reportedly be taking a medical leave from “Good Morning America” to receive a bone marrow transplant from her sister, the Associated Press is reporting.

Just last month, Roberts announced that she has Myelodysplastic syndrome, a blood and bone marrow disease, and yesterday she told reporters gathered for the Television Critics Association conference in Beverly Hills that she would most likely be taking a break from hosting “GMA” at the end of August or early September to undergo surgery.

“It’s fascinating-slash-scary how to prepare yourself for something like this,” she said. “I do go through moments of fatigue.”

“Good Morning America’s” lead over its competitor, the “Today” show revives her though.

“The run that we’ve had has truly energized me,” she said. “It’s pretty good medicine, I gotta say, to be taking!”

Roberts didn’t say how long she expected to be out, but knowing the survivor she is after her bout with breast cancer five years ago, we doubt it will be long. Hopefully all goes well!

Brande Victorian is the news and operations editor for madamenoire.com. Follow her on twitter @Be_Vic.

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A Perfect Match: Robin Roberts’ Sister To Donate Bone Marrow To ABC News Host

July 9th, 2012 - By madamenoire
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Source: thetopofthemorning.tumblr.com

From BlackVoices.com

Robin Roberts updated her fans on Friday about the latest round of her fight with bone marrow disease.

The “Good Morning America” host, who announced in June that she had contracted a rare disease called MDS, had to take the day off to accompany her sister Sally-Ann to the doctor. Sally-Ann is going to be Roberts’ bone marrow donor, having been called a “perfect match.”

Check out Robin’s reaction to the news and the testing she and her sister went through on BlackVoices.com.

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Sad News: Robin Roberts Diagnosed With MDS

June 11th, 2012 - By Brande Victorian
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Source: thecubiclechick.com

Robin Roberts is a survivor. Five years ago, The ABC News morning anchor battled breast cancer and became a symbol of hope for many women in her situation, but now the 51-year-old has a new health challenge to take on: MDS.

Myelodysplastic syndrome, or MDS, is a rare blood disease that turns into another form of cancer, acute myelogenous leukemia, in about a third of patients, and can also lead to low blood counts and other complications. This morning, ABC News President Ben Sherwood sent out a note to the staff about Robin’s condition in which he wrote:

“We love Robin, the heart and soul of ABC News, and we’ll stand arm in arm with her as she fights this new battle. She is the captain of our GMA team; she has been the keystone of our recent victories; and she will lead the program for many years to come.”

In his note he also included an inspiring e-mail he received from Robin about her outlook on her newest battle:

Ben

 # # #

Here we go again…

As many of you know, 5 years ago I beat breast cancer.  I’ve always been a fighter, and with all of your prayers and support, a winner.

Sometimes the treatment for cancer can cause other serious medical problems. Today, I want to let you know that I’ve been diagnosed with MDS or myelodysplastic syndrome.  It’s a disease of the blood and bone marrow and was once known as preleukemia.

My doctors tell me I’m going to beat this — and I know it’s true.

If you Google MDS, you may find some scary stuff, including statistics that my doctors insist don’t apply to me.  They say I’m younger and fitter than most people who confront this disease and will be cured.

Today, I will start what is known as pre-treatment — chemotherapy in advance of a bone marrow transplant later this year. Bone marrow donors are scarce and particularly for African-American women.  I am very fortunate to have a sister who is an excellent match, and this greatly improves my chances for a cure.  As you know from my recent interview with Mark Zuckerberg, organ donation is vitally important. Many people don’t realize they can be bone marrow donors.  I encourage everyone to sign up on a donor registry like bethematch.org.

I received my MDS diagnosis on the very day that Good Morning America finally beat the Today Show for the first time in 16 years.  Talk about your highs and lows!  Then a few weeks ago, during a rather unpleasant procedure to extract bone marrow for testing, I received word that I would interview President Obama the next day. The combination of landing the biggest interview of my career and having a drill in my back reminds me that God only gives us what we can handle and that it helps to have a good sense of humor when we run smack into the absurdity of life.

Bottom line: I’ve been living with this diagnosis for awhile and will continue to anchor GMA.  I love what I do and the people with whom I do it.  Along with my faith, family and friends, all of you at ABC News give me the motivation and energy to face this challenge.

Going forward, it’s business as usual at GMA, which means I’ll be right here every day with George, Sam, Josh and Lara.  When I miss a day here or there, I’m fortunate that some very talented friends at ABC News will fill-in.  When I undergo the transplant later this year, I’ll miss a chunk of time.

When I faced breast cancer, your prayers and good wishes sustained me, gave me such hope and played a major role in my recovery.  In facing this new challenge, I ask humbly for more of your prayers and love – as I will keep you in my mine and update you regularly on my condition.

Love and blessings,

Robin

Not many women could be that positive the morning of pre-treatment but it’s very comforting to know that Robin’s sister is a match for donation and that she’s well supported by family, friends, and her coworkers to battle this disease. This is also a bittersweet opportunity to shed light on the issue of bone marrow donation among African American women, which I’m sure she will do. I’m definitely hoping Robin pulls through strongly and becomes an MDS survivor as well.

Brande Victorian is a blogger and culture writer in New York City. Follower her on Twitter at @be_vic.

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A Young Girl’s Need For a Bone Marrow Transplant Requires More Black Donors

July 8th, 2011 - By Victoria Uwumarogie
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What were you doing in the fifth grade?

You were probably getting excited about your first forays into organized school sports, joining some cliques, getting excited about the impending coolness of junior high school soon. But chances are, you weren’t going through hell and back trying to find a bone marrow donor.

11-year-old Imani Cornelius was diagnosed with myelodysplastic syndrome almost two years ago. The syndrome is a blood and bone marrow disease that if not treated with a bone marrow transplant, can one day develop into full blown leukemia. Imani’s form is mild at the moment. Being bi-racial, with a white mother and black father, finding a donor who matches her makeup has proven to be difficult. Add to that the fact that there is a noticeable lack of black donors in the registry, who could probably be the match she needs since one can usually be found through an individual of a similar ethnic background. But at the moment, the chance of a white person finding a match on the Be The Match Registry is almost 93 percent, while for African Americans and other minorities, the low can reach 66 percent.

Currently, Imani is doing the things she should as a funky fifth grader: playing soccer, doing dance. But in order for her to continue to do these things with no problem, this little girl needs a donor. So more African American donors are being asked to step up and make a difference.

To here more of Imani’s story, including Tionne T-Boz Watkins’ role in it, check out AOL Black Voices.

To also find out what you can do to help, make sure you visit the National Marrow Donor Program’s website.

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