Texas Mother Is Raising Awareness About Baby’s Serious Medical Condition

June 27, 2015  |  
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A Texas mother is raising awareness about a rare medical condition in her 11-month-old son. Megan Boler gave birth to her second child Matthew about a year ago and noticed that his head was long and skinny. She thought it was odd but didn’t think much of it at first.  At his two month check up the doctors told Megan and her husband that his head shape was due to something called crainiosynostosis.

According to the CDC, craniosynostosis is a birth defect in which the bones in a baby’s skull join together too early. This happens before the baby’s brain is fully formed. As the baby’s brain grows, the skull can become more misshapen. This can limit or slow the growth of the baby’s brain.

After his parents received the news, he underwent corrective surgery that created a new soft spot that would allow his head to grow sideways. After a tumultuous recovery period, a week later the swelling went down and he started wearing a helmet 23 hours a day to help reshape his head.

She is sharing her story to bring awareness and help alert other parents, according to CBS:

“I was completely shocked and overwhelmed,” Boler told CBS News. “It felt like the world stopped for a moment. When the doctor said ‘craniosynostosis,’ that word in itself is very scary.”

“A normal baby’s skull is made up of different plates of bones and so the different bony plates come together at these seams, or sutures,” Matthew’s doctor Sandi K. Lam, M.D., Director of Craniofacial Surgery Program at Texas Children’s Hospital, explained. “They’re open when the baby is born to allow the brain to grow. Over the first two years in life, there’s a lot of rapid brain growth, and if any of the sutures are fused at that time, it doesn’t allow the brain and skull to grow properly.”

Today, he is a healthy 11-month-old baby. “He’s happy-go-lucky and super cheerful,” she said. “He loves people and loves to laugh and to talk. Most people when they meet him have no idea what he’s been through.”

“If there’s a family out there who’s looking at their baby and is concerned about the shape of his head, we want them to know that they should ask their doctor to get their child evaluated,” she said.

Photo: Megan Boler’s Facebook

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